Hello Everyone!

I’m Mary Harings and I run a Morquio’s parent support group out of my house in Tucson, Az. Now I realize there’s not many (if any) of you out there today that have children with Morquio’s. But perhaps you’ll come across one through the mps society or another organization. And when you do - send them my way. 

The purpose is to try and gather as much medical information on Morquio’s as possible. That will be put together and reformated into reader friendly terms. As well as personal interests and hobbies and basically all the information a parent wants to know. Needs to know. To have a List of Holistic dr.’s as well as M.D.’s . In an approach which combines many different modalities of medicine. To give parents new ideas and avenue’s to search into.

I’ve always wondered, as I’m sure many of you have, "Why me to raise this particular child – can I do it"? Not an easy question to answer. Though I’m going to try. My sister (whom is quite spiritual) put it to me this way (I was agnostic at the time) "Don’t you see the wonderful gift that God has put into "YOUR" hands – you’ve been chosen to do this task – you are the privileged one – thank you is all you ever need to say for this precious gift". Well, She lives in Canada and I , at the time, Lived in Sedona, Arizona - We were on the phone – So She wasn’t privy to "the look" I gave Her!! Of course at the time I wasn’t endorsing that concept. That "God" thing. The Bible. The Scriptures. It’s about the time in the conversation when I roll my eyes . Here She goes again! Will She ever let up on this view? I was angry, sad, mad, oh, I don’t know? devestated maybe hmmm….. let me see what else? So Many things. But thankful was not on that list. Being thankful didn’t enter my mind at the time. See, this was my older, wiser sister speaking to me. I thought she’s off her rocker – this is my sister’s advice to me??

Well, this has been a long road – and lots of time has passed since then. So Here I am saying this to you and knowing finally it’s true and there’s no doubt! A Gift has been bestowed upon Us –Thank You God For these Beautiful Children!

I want parents to have a special place to turn to when they first find out – DO YOU REMEMBER THAT DAY?" When You first found out about your child? I could have used and needed a connection with other parents. Very much so. I think there’s a definite need. And So here we are together Today!

And I say again:

Let’s live mindfully. Let’s live in the present. Let’s not waste a moment – It’s much too precious!!!

Thank You,

Mary Harings – concerned parent of a child with Morquio’s.

Email me!
sackrison@aol.com